Discussion Forums > Working Towards a Cure
hydroxurea......
maha:
Hi Micky
I feel its better to wait for a week as the drop in hb is not much. It could be just due to the change in hydration level. Also temperatures are soaring in Delhi, that too can account for a drop in hb. You have repeated the hb in just five days, was Kabir sick or showing signs of a low hb? Wishing Kabir the best of health
Maha
kabir_love:
hi. maha, zaini
i m wating for 5 more days to see. but your right wheather here had change to very much hot now its about 40.c here so it might be reason to drop in hb aswell. but like zaini said its good if we keep hb high so doctor does stoped us but in my heart i feel to go to blood transufson.. welll finaaly we are waiting till monday to check hb.. we check hb by prick from fingure so that dosnt hurt kabir .. much.
regs
micky
Manal:
Micky it is acceptable to give the hydroxyurea up to 9 months to be able to evaluate it and to know whether you will continue on it or not. My short expierence of 5 months is that the HB started to rise starting the fourth month only, but an accumulative increase in MCV started from the first month
hope this might help
manal
kabir_love:
thanx manal for information . u gave hope for more time to us. please confirm me that now i m going for transfusion on monday.so please confirm me for HYDREA need to continue after bt? as after bt hb will be rise to 11 i think now is 6.8. we will give me 200ml blood.
so what to do. hydrea need to stop until hb comes down to 8? or not
regs
micky
maha:
Hi Micky
From what I understand hydrea is usually continued even after blood transfusion. Some majors on transfusion take hydrea as it increases the time between two transfusions.
take care
maha
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