Discussion Forums > Thalassemia Major
Slow rate transfusion and warm antibody
Sharmin:
Thank you again Andy,
Our doctor says that the information you provided makes a lot of sense. I will print the articles off for him - he usually takes the information and shares it with a few other doctors - they all agree that this course of treatment makes a lot of sense.
And the good news is that they have got some blood for us!! So we are off to the hospital to get his slow & small transfusion!
Thank you everyone - we love you all!!!!!!!!!!!!!!!!!!!! :hugfriend :hugfriend :hugfriend :hugfriend :hugfriend
Sharmin:
Andy,
We shared all of the information with our doctor today. He has taken our print offs and he is studying it all - he wants to fully understand it before deciding our future course of treatment. He is the best doctor ever, he spent a good 1 1/2 hours with us today - at the end of his work day to make sure he understood our views - so that he could research them further. In the meantime - he decreased the transfusion from 20cc/kg to 15cc/kg - and the rate as I have mentioned from 90cc/hr to 80cc/hr. We will return in 2 weeks. Also, with IP6 and a slight increase in desferal the ferritin has decreased from 2300 to 1700. The information you have provided will make a great difference - it is already starting to:) Thank you for your hard is making things much better.
Sharmin
Sharmin:
Andy,
My son was transfused on May 2, his pre-transfusion hg was 80. He was given 15cc/kg rather than his usual 20cc/kg - at the slower rate I mentioned.
Today, 10 days later his hg is 78. I am a little disappointed because I had hoped that the tx would last 2 weeks, but I suppose we did start pretty low. Maybe we can try transfusing 1 week apart for a while until his pre-tx hg is high enough to last 2 weeks with the lower volume. I'm glad that we are getting expert help soon, because things are definitely getting worse, considering that he is on the prednisone and his hg is still falling quite rapidly :dunno. In the beginning prednisone was able to make him last 5 weeks, and now we are barely getting through a week. We desperately need a change in his treatment. I will let you know what his doctor decides to do.
Thanks again Andy,
Sharmin
maha:
Hi Sharmin
Praying your soldier gets through this as soon as possible. Wouldn`t it be beneficial to know his post trans hb just to know the rate at which he is dropping. Hassan always gets 15cc/kg and there have been times when his post trans hb had shown an increase of a little less than 2gm/dl and sometimes even showed an increase of over 5gm/dl depending on the quality of blood. What your son is going through is something very different but what I want to point is perhaps his hb did not increase much in the first place. Wishing your son loads of health
Maha
Zaini:
I hope everything will turn out fine sharmin,this problem is scary,my prayers are with you and maani. :hugfriend
ZAINI.
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