Discussion Forums > Working Towards a Cure
The Carao Trial - How effective is it & who benefits most etc.
Sharmin:
1. Confirmation of delivery of the carao - October 23, 2008
2. Date when carao is begun - October 23, 2008
3. Dose given - 4 tsp with warm milk
4. Age and diagnosis of patient - 10 years and 4 months, thalassemia major
5. Average hb before carao was begun (the last several blood test results, if available) - pretransfusion hg 90 - 100
6. Results of all hb tests done during or soon after the period of use of carao.
Blood test results from January 31st, 2009
3 1/2 weeks since last tx - hemoglobin today 69
7. Whether or not any other treatments were started during the period that carao was given - began B complex (50mg) October
25th.
8. Any extra observations, such as observations on energy level and effects on the overall health of the patient - his energy has been great during the last 3 weeks - he came down with fever chest/nasal congestion on Thursday and became pale today. We think that his low hg may have resulted from the cold.
Will update after next blood test.
Sharmin
Sharmin:
Lloyd,
We are now on the third bottle of Carao.
Sharmin
Zaini:
We are on the seventh bottle.
Zaini.
Sharmin:
Way to go Little Z :thumbsup
Sharmin
Zaini:
Thanks Sharmin :hugfriend.
I don't know if carao has effected Little Z's hb levels,she has returned to 4 weeks interval between transfusions,but there are so many factors,now when i go to hospital ,i make sure that transfusion rate is slow,rather the 1 and a half or 2 bags per hour.
One thing is for sure,carao has not shown any negative impact.
Zaini.
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