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Zaini:
Hmm...This is a long list of meds..and when ever i start anything new,like i just started vitamin E,my daughter goes like "mama!! one more ? "  :rotfl :rotfl

She is on
1- Ferriprox -thrice a day
2- Desferal -thrice a week,six viles per week
3- IP6- Twice a day
4- Wheat grass -half cap daily
5- Folic acid- 1 gm

Chewcal (GlaxoSmithKline) which contains
6- Calcium- 400mg (it says elemental calcium,does it make any difference?)
7- Vitamin D- 100I.U

Vidaylin (Abbott laboratories) which contains
8- Vitamin A- 0.9mg (3000 units)
9- Vitamin D- 10 mcg (400 units)
10- Vitamin B1- 1.5 mg
11- Vitamin B2- 1.2 mg
12- Vitamin B6- 1.0 mg
13- Vitamin B12- 3.0 mcg
14- Vitamin C- 50 mg
15- Nicotinamide- 10 mg (I am not sure what's this  ??? )

Tokosvit which contains
16- Vitamin E- 400 I.U

And when ever she is on desferal i ask her to skip Vidaylin and instead give her half tab of Abocal which contains:
Vitamin C- 250 mg
Vitamin D- 200 I.U
Vitamin B6- 5 mg
Calcium carbonate- 335 mg.

Andy,is this list enough? :wink

Zaini.

P.S She is also taking carao right now.

Ayesha:
Zaini: can i know what form of Wheatgrass? and from where you getting it? and from where you bought tokosvit? i tried but i cudn't find it :(

and what is IP6??

Sharmin & Umair: yes his Bone Density test has been done while he was admitted and doctor have told us that he do have weak bones. but they never told us about pyshio or any exercise,

okay here is what we are using these days:

Me:
desferal 5 times a week, 20 vials per week
Vitamin E (I got evion 200 mg)
Vitamin C (Cecon 500 mg)
Qalsan (Calcium)
Alpha Leo (Vitamin D)

Salman:
Desirox 1000 mg per day
Vitamin E
Vitamin C
Qalsan
Alpha Leo

anything you guys thing we should change or add?

Zaini:
Ayesha,

We are using wheat grass in liquid form,i.e wheat grass super shotsfrom www.drwheatgrass.com,my father has a friend abroad who sent it for my daughter.I bought tokosvit from a regular medical store,i am amazed you couldn't find it,try some big names like times medico or kausar medico.When are you going for transfusion,i can bring it for you if you want me to,my daughter's transfusion is on coming saturday.

IP6 is a natural chelator and an antioxidant,it can not replace regular chelators but it does help in chelating,Both me and Sharmin noticed a change in our kids skin colour when we started IP6,my daughter's skin looks much lighter now.

Zaini.

Ayesha:
Zaini: thanks alot :) will check Kausar soon, and if i didn't get it i will let you know..

do you feel difference after using Wheatgrass? and what is the form of IP6? and from where it can be bought?

M asking too many questions I know.. sorry for that :dunno :dunno

Zaini:
Hey NO Worries,

Questions are welcomed here on this forum  :biggrin When my daughter started wheat grass,i noticed a significant and very visible change in her energy levels,it gives her a lot of energy.

IP6 are capsules,unfortunately not available in Pakistan,you can buy them online from www.puritan.com .

Zaini.

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