Discussion Forums > Working Towards a Cure

Things you trying

<< < (4/11) > >>

nice friend:
Your Welcome Sis ,

Umair

Lyanne:

    Really ? then I must take that as well, I'll have to check if it is available here in country  :grin
    My sister takes lyrica(pain killer) for her diabetis, and she also have a weaker bones compared to mine.... She is given a vitamin D also. I'm regularly taking Vitamin E folic acid and B complex but i was not advised to take vitamin D. :dunno

     

Andy Battaglia:
Vitamin D is now believed to be necessary for all thals. This is something I heard many times at the Singapore conference and it is very good advice. Even non-thals are now being told to take more D and the child requirement for vitamin D in the US has just been doubled. When I talk to thals I always insist in vitamin D now. Unless one gets a real lot of sunshine, supplementing with D is needed.

This is a good example of some of the things that were there at the conference for those paying attention. I agree that the conference was weak in total content but there were still important things to be learned. This particular subject of vitamin D was heavily emphasized by the doctors and I think many people may overlook its significance.

sahil:
Andy,

I want to start with a multivitamin. I have never taken any multivitamin, reading the posts by members, I feel the need to start with it.

I was prescribed L-Carnitine tablets cause my carnitine counts were pretty low. I took it for a month or so and stopped it on my own.

Its the transfusions, chelation and alendronate tablets and folic acid I am on, nothing else.

Sharmin mentioned about a multivitamin named Centrum Silver by Wyeth. But, its not marketed in India.

So, if you could just let me know some other multivitamin that doesn't have iron in it would be very helpful of you.

Thanks in advance.


\peace/

sahil:
Hello,

I mailed Dr. M B Agarwal regarding the multivitamin thing. Ha mailed me back saying, "You must never take vitamin containing iron. You must tell you friends having thalassemia major to stop taking vitamins containing iron. It is dangerous."

He's prescribed me Capsule Zevit once a day.

Capsule Zevit conatins-
Zinc, Vitamin B1, B2, B3, B5, B6, B7, B9, B12, Vitamin C.


\peace/

Navigation

[0] Message Index

[#] Next page

[*] Previous page