Discussion Forums > Announcements
1st Pan-Middle Eastern Conference on Haemoglobinopathies ..May 2009, Syria
Manal:
I am sorry Mariam that he is not replying but i hope he will soon. I know how frustrating this is :mad.
Yesterday, i saw my hematologist and i told her about Aysam's iron levels and she also advised the IV desferal and added that it will cause a significant decrease in his ferritin.
But again, you can not do this in Australia as you will need a prescription :mad
manal
aysam:
manal so she agrees also iv desfral
what will be the result if he dosnt have it and his iron levels dont come down soon
im so confussed also sory can i ask is hs a doctor or professer?
Manal:
Mariam the IV desferal is considered an aiding factor in order to see a quick drop of ferritin, but not a continous treatment and also don't forget that he has not reached his targeted dose of exjade yet which is the chelating dose. The doctor is Professor Amal El-Beshlawy Prof. of Pediatric Hematology Cairo University
manal
Dori:
Mariam, does Aysam's doctor refuse to give your son desferal?
I know how frustrating this is. I keep crossing my fingers for a good result!
aysam:
no she dosnt refuse
she cant give him desfral ill show you a picture why but she refuse to put the dose up for exjade and i think she dosnt know what she is doing i think she is afraid
Navigation
[0] Message Index
[#] Next page
[*] Previous page
Go to full version