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1st Pan-Middle Eastern Conference on Haemoglobinopathies ..May 2009, Syria

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Sharmin:
Mariam,

I also agree that 24hr IV desferal may bring down our little Aysam's iron levels quickly.  Please see if your doctor agrees to do so.  My son used to have IV desferal with each transfusions when he was younger and he did well with it. 

Take care and please keep us posted,

Sharmin

aysam:
hi all how everyone ?
aysam is doing fine just want to ask he did some test for the zinc and i was told it was low ?
wich meen ?

if someone can telll me what to give him his liver test also playing up and his iron is 3000 its been so high for so long his face always looks dark he hasnt any couler anymore even when he puts blood he seems to always be dark in couler ?
i am going oversease in two weeks but i cannot take him his papper work to become lebenisse i spoke to proffecser taher and he rufesed to take him as a paitent if he hasnt become a citizen and i have some problem with his pappers  i am going to see if i can fix them i will go to the confrencein syria also

Dori:
I am so sorry to hear that you can only get (the right) medical help when you got the right papers.  :mad
I hope the paper work can be fixed soon. I wish you also a good trip & keep us update, please.

 :hugfriend

Dore

nice friend:
Hi Sis,
I wish you best of  luck in getting good medical treatment for Aysam , :goodluck

Lots of Good Wishes
Best Regards
Take Care
Umair

Zaini:
Mariam,

I s Aysam taking IP6,both me and Sharmin when started IP6 noticed a great change in our kid's skin color.And is he taking any Zinc supplements?if he is not ,start one right away.

I hope your paper work problem will be solved soon.

Zaini.

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