Discussion Forums > Thalassemia Major
Hb levels
nice friend:
--- Quote ---the recommendation in Oakland is 14 - 16cc/kg every 4 weeks.
--- End quote ---
Hi Sharmin Sis & all ,
According to 16cc/kg and my weight (41kg) mine should be 656ml ... but i m on 10 days Tx schedule and having 3 Transfussions every mmonth to keep my pre-Tx Hg maintain , if a unit of blood contain's 250ml blood ( which is the least vloume ) it mean's i m getting 750ml per month ... isn't it something strange ???? i m worried once again and i think the discussion is to start once again about the my Tx and volume of Tx .... :whew soo much problemes , soo much complications and soo much concerns ...
Umair
Lena:
No need to worry Umair,
there is one simple rule: never get below 10. This is the only rule you must follow. Starting from there, the in-between transfusions interval should be arranged according to pre-transfusion Hb and blood received. Never mind how much blood you take, since you maintain your Hb above 10 and you get well chelated.
Lena.
nice friend:
Lena,
how can i avoid thinkin gabt the volume of blood i m consuming , more blod mean's more iro and i m looking to get iron down , i m on 18.29 its a little high ... anywayz its okiey i think bcoze today my Hb was a lil high than it was last time last time pre-tx hb was 9.3 and this time after 12 days it was 9.6 , pretty good and relaxing , i think that i m not having probleme like increased blood need , it could b bcoze of blood volume they might be giving me small unit than 250ml .... anywayz i m ok with this Tx rate ... thanx alot for your Words :thankyou2
Best Regards for you :
Umair
Tedi:
Before an year my hb levels was 6-7 even 5 or 7days after bt, because i was made antybodies :wah
6months after that i was well , and my hb levels was even very higher 144 - 30 days after bt :dunno
Now my hb is normal about 98-110, 20-25days after bt.
Usually i go for transfusion with 90 -100, but sometimes its higher.
Sharmin:
Tedi,
I am glad to know that your hg level is staying high. How did you deal with your antibody problem? Did you have autoantibodies? I am very glad to know that the problems seems to be resolved.
Sharmin
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