Discussion Forums > Thalassemia Major
Hardik
hardik:
Hello Lokkhi maa
As my baby is of same age ......I also faced same problem of poor appetite of Hardik.....but on giving Pabri(as I told u earlier that it act as a liver tonic and increases appetite )only 2-3 days after transfusion moves me and baby to the comfort zone of good eating ......plz try if u get it.....as it can be found easily in abundant in any part of asia
Just ask older ones in your family....they must have knowledge of it.I give only 2 spoon pabri plant juice ....and ....if the problem still persists ...i continue it for 2-3 days more......so in all a dose of 7 days ....is sufficient .....but depends on body needs.....
plz also check her SGOT and SGPT and other liver function LFT tests on regular basis if she is on Desirox/Defrisirox......as appetite directly relates to liver(according to my knowledge)......
you can see the picture of pabri on my previous page ....
Regards
Neha
Lokkhi maa:
Thank you so much Andy and Neha.. :heartpink :heartpink
hardik:
Can desirox 250 mg and wheatgrass be given at same time.......??? to a 2 year old baby weighing 11 kg...
Andy Battaglia:
They can be given at the same time, although there is no reason to do so.
hardik:
HII ANDY
First of all sorry to disturb u on ur special day......but u made urself so much important for all of us that whenever anyone of us have any problem.....the first that word came in our mind is ANDY.....
On Jan 19th....hardik(2 year weighing 11.5 kg) had his BT and his LFT test has also been carried out.....Shocking results are as below:---
Biliburin (Total) =1.2(0.2-1.0) sodium = 139 (135-145)
Biliburin (Conj.) =0.2(0.25) Potassium= 4.8 (3.5-5.5)
Alkaline Phosphaste =177 (40-130) Chloride =103 (98-107)
[bgcolor=#00FFF5]SGOT = 163(5-40)[/bgcolor] Urea =28(15-45)
[bgcolor=#00FFF5]SGPT = 427 (5-35) [/bgcolor] Creatitintine = 0.6 (0.8-1.8)
Uric Acid = 5.1 (2.4-7.0)
Calcium =9.6(8.0-10.4
[bgcolor=#00FFF5]Last ferritine=1147 [/bgcolor]on 18th Nov 2015
The Doctor advice to stop the Desirox 250mg(1 tab daily) for 2 weeks......then to test again for SGPT and SGOT and if it is in normal range...then to start Desirox again with same Dose
Now Plz guide about Following:
1)-->To Continue or not with Calcium(10 ml daily) and Folic Acid(2.5 mg daily and it is not L-methylfolate)
2)-->Can I give him Green tea or to stop it for now.
3)-->IP6(1 cap daily 510mg) can be given or not or reduce dose can be thought of.
4)-->Wheatgrass can be given or not If yes,how much
5)-->Food/diet to Avoid and to give more for good heath and to improve Liver condition
6)-->how to chelate right now.
Hardik has a little bit swelling under his eyes....what to do ???
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