Discussion Forums > Thalassemia Major

update on Hassan

(1/3) > >>

maha:
Hi
Its now over a year since my 11 year old has been off transfusion. The last BT he had was in june 2016. He has been on the 'novel therapy' by Dr Vijay Ramanan. The entire year his hb was between 8.5-9.5. Yesterday for the first time it recorded a 10.4gm/dl.

maha

Lokkhi maa:

 :congrats   Maha

Could you please give me the address of Dr Vijay Ramanan and share his appointment system.

Fahed_FN:
Congratulations Maha,

Excellent news indeed.

I would like to know what are you giving your son currently, i am planning to have a BMT for my son in India and it would be much more relieving if we can raise HB without a BMT.

maha:
@Lokkhi mama
Dr Vijay Ramanan is located in Pune, India. Appointments can be scheduled by calling on 9555585203. You could email him at info@hematologyclinic.com

I reside in KSA, and we book an appointment every 6 months, also carry meds for 6 months.

@Fahed, presently he is on thalidomide, wheatgrass, hydroxy urea, folic acid, aspirin, L-carnitine, L- argenine, Vit B12, and grape seed extract. These are prescribed by doc - besides these I give him vit E and IP6 - off and on, as he is not on chelation from the time his ferritin hit 200.

Lokkhi maa:

Thank you Maha...

May Allah bless your family...

Navigation

[0] Message Index

[#] Next page