Discussion Forums > Thalassemia Major

update on Hassan

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sanjuna:
Hi Maha, Thanks to post this good news, I like know is your son use take transfusion from which age, is he takes any tab to reduce Iron level before go to Dr Vijay Raman.

After getting this information I am planning to visit Pune to meet Dr Vijay Ramanan. My son is 2 yr old, he started taking transfusion every 3-4 week since his six month age. last 3 month his iron level also more he is taking tab for  this last 3 months.
So mainly like to know from you during Dr Vijay Ramanan treat , did you continue other tab also and with blood transfusion, or you stopped all other things.
How many months you continue for Dr Vijay Ramanan's treatment .

sanjuna:
Hi Maha,
Please help me to know, are you still continue with Medicine or completely stopped.

maha:
Hi Sanjuna
My son was 1yr old when he first started transfusion. He started chelation when he was 2yrs and 3 months. When we started Dr Vijay Ramanan's meds his ferritin was around 600. So he reduced the dose from 800 to 500. He was chelating along with other meds for 3 months or so and stopped chelation when his ferritin reached 200. Now its 17+ months he has been off transfusion. His hb last week was 9.4. Dr Vijay Ramanans therapy is a management and not a cure. so he has to be on the meds - cannot stop it, so far we are on the same dose prescribed initially. Some of his patients were able to reduce the dose to half though.

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