Discussion Forums > Thalassemia Major

update on Hassan

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Fahed_FN:
Thanks Maha,

How often was Hassan getting transfused and what is his HB at that time?

I will work on scheduling a visit to Pune and seeing Dr. Ramanan.

May Allah bring cure and good health to all our children.

maha:
Sorry for the late reply, was traveling. Initially Hassan used to be transfused every 4 weeks 15ml/kg, but as he grew and his requirements increased we transfused him every 3 weeks, 12ml/kg as we could arrange for only one donor at a time. His pre transfusion which had been over 9.5 for years had dropped to 8.5 and the hospital refused to use another unit. Finding veins was becoming a issue and he was getting pricked over and over again in the same hand. So had decided to try Dr Ramanan's novel therapy. He was transfused twice first after 5 weeks (hb 7.5) and then after 8 weeks(hb 7.8) once we started the treatment. Alhamdulillah after that for 6 months his hb stabilized around 8.8 and then started to rise. 

Andy Battaglia:
Another patient helped by Dr Ramanan. It won't be enough for every patient, but so many are being helped. Not only does this help the individual patients, but it also lessens the demand for the available blood supply for other patients.

Sharmin:
Maha,

This is such great news!

Sharmin

zahra:
So happy for you Maha

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