Vitamin and Mineral Supplementation in Thalassemia

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Re: Vitamin and Mineral Supplementation in Thalassemia
« Reply #150 on: January 05, 2013, 08:44:02 PM »
Thank you for getting back to me. The last time it was checked was in 2010 and I was low...I was really anemic, very malnourished, and sick. I kept taking the iron supplement, and felt much better. I just dropped it as I started a new supplement called celiAct.  I am having another blood panel done on Feb 14th. Not sure if I should keep taking the iron, as now that i am not on it I feel a little weaker. are the vitamins I am taking sufficient.  please get back to me!
« Last Edit: January 10, 2013, 11:18:42 PM by chili »

Re: Vitamin and Mineral Supplementation in Thalassemia
« Reply #151 on: March 15, 2013, 05:37:25 PM »
Hello Andy,
I was reading through this post, very useful information. However, I feel we could have one chart with Age - Weight along with recommended and maximum dosage for various vitamins / supplements for benefit of all.

Kindly let me know your thoughts.

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Offline Pratik

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Re: Vitamin and Mineral Supplementation in Thalassemia
« Reply #152 on: March 15, 2013, 07:29:32 PM »
Hello Andy,
I was reading through this post, very useful information. However, I feel we could have one chart with Age - Weight along with recommended and maximum dosage for various vitamins / supplements for benefit of all.

Kindly let me know your thoughts.
If anyone gives me proper rough table details, I'll happily make a nice presentation in image format in photoshop!

-P.
Every child is special.

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Offline Dharmesh

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Re: Vitamin and Mineral Supplementation in Thalassemia
« Reply #153 on: March 16, 2013, 05:34:17 AM »
Yes, it should be done.
I will try to send u details
Start listening your body, it always gives signs

Re: Vitamin and Mineral Supplementation in Thalassemia
« Reply #154 on: March 25, 2013, 01:25:57 PM »
is anyone able to provide the table with all the details on supplements / vitamins along with dosage as per age / weight??

Dharmesh,
any updates from your side?


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Offline Pratik

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Re: Vitamin and Mineral Supplementation in Thalassemia
« Reply #155 on: March 30, 2013, 02:12:31 PM »
Milk thistle works wonders.

Yesterday's reports:

SGPT: 49
SGOT: 45

ALT/AST have hardly been these good, always were above 80, if not, hardly around 65.

I take around 500mg/day (1 250mg capsule in morning and other one after dinner).

I'd suggest this to anyone to be safe from possible liver problems.

-P.
Every child is special.

Re: Vitamin and Mineral Supplementation in Thalassemia
« Reply #156 on: July 01, 2013, 12:38:39 PM »
Yes, it should be done.
I will try to send u details

Hi Andy, Dharmesh,
Can you share a chart for useful vitamins / supplements along recommended dosage as per age / weight? this will benefit all thal.

thanks!

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Offline Himanshu Kumar

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Re: Vitamin and Mineral Supplementation in Thalassemia
« Reply #157 on: September 10, 2013, 04:19:30 PM »
Hi,

Has anyone created a dietary/supplements/vitamins/medication chart and its recommended dosage by age/weight etc.? Where can I find this chart in this site?

Regards,
Himanshu
Regular transfusion, Keeping pre transfusion HB above 10 and Iron Chelation are the three mantras for thals to stay healthy.

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Offline Dharmesh

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Re: Vitamin and Mineral Supplementation in Thalassemia
« Reply #158 on: September 11, 2013, 04:13:52 PM »
No still not :-\
Start listening your body, it always gives signs

Re: Vitamin and Mineral Supplementation in Thalassemia
« Reply #159 on: September 21, 2013, 02:34:49 PM »
Yes, I think we need to come-up with this chart for benefit of all.

Also, I wanted some advice on coming up with optimal plan for supplements. Current, I am following the below routine:

Body Weight: 18.5

Morning empty stomach: Start with supplements - ZincoVit (10ml) + Calcimax P (10ml) + Folic Acid + Vit E (200 IU) + IP6 / Inositol (~1.2 g / 440 mg)

Afternoon: Asunra 400 mg

Evening: Asunra 400 mg and L-Carnitine (1000mg, just started with this).

Had a few questions:
is anything missing in the current routine?
is it okay for IP6 to be administered with other supplements?
is efficacy of Asunra reduced if it is had after meals as opposed to having it prior to meals?

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Offline Luana

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Re: Vitamin and Mineral Supplementation in Thalassemia
« Reply #160 on: October 18, 2013, 03:56:34 PM »
Hi, I need some help with supplements & Vitamins.
I am currently on a daily Exjade dose of 1500mg.
Vitamins and Supplements, I am taking:
 Folic Acid 10mg
 Vitamin C 250mg
 Calcium 600mg
 Vitamin D 1000iu
 Vitamin E

Could any one advice me, what dose of daily magnesium I should intake?
Moreover, I am 27, should I take a higher dose of calcium?
I have been taking Vitamin C  from a young age as I was on Desferal.  Earlier posts in this topic, suggest only to take Vitamin C when using Desferal. So, since I am now on Exjade should I STOP taking Vitamin C?

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Offline Andy Battaglia

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Re: Vitamin and Mineral Supplementation in Thalassemia
« Reply #161 on: October 18, 2013, 04:11:16 PM »
Hi Luana,

You should be taking magnesium at about 1/2 of your calcium dose, so 300 mg daily.
Your vitamin C intake is considered high for a thal major, but before advising a dosage, I need to know if your iron load is under control. If it is not and your ferritin is above 1000, you should take no more than 250 mg C daily.
Andy

All we are saying is give thals a chance.

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Offline htuongvy

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Re: Vitamin and Mineral Supplementation in Thalassemia
« Reply #162 on: December 04, 2013, 03:08:25 PM »
Hi Andy and all,
I am new here. I really need your help. I have a 4 and a half yrs old son with HB E and Beta Thal. His current supplements are as follows:
- Vitamin E-400 IU
- Calcium 5ml
- Acid folic 5mg
Is that ok? He should take them daily, monthly or stop in a period ?
I am from Viet Nam. In my country, we don't know and don't have wheatgrass. Could you pls explain for me? Where i can buy it in US ?
Next time (may be 15DEC), my friend will be in US for a half moth. I want to ask her to buy some supplements for my son, for ex Yummi bear as your advice in the last post. Plls give me some name of supplements that is good for my son.
Pls help me. I am looking for hearing from you
Thanks all.
Vy

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Offline Andy Battaglia

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Re: Vitamin and Mineral Supplementation in Thalassemia
« Reply #163 on: December 05, 2013, 03:05:07 PM »
Tell your friend to bring back wheatgrass powder, as that is easiest to mix. My preferred type is kamut grass, as this is the original form of wheat. If kamut grass can't be found, use wheatgrass. I would suggest taking the vitamins every other day at this age or taking lower doses daily.
Andy

All we are saying is give thals a chance.

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Offline htuongvy

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Re: Vitamin and Mineral Supplementation in Thalassemia
« Reply #164 on: December 10, 2013, 05:41:02 AM »
Hi Andy,
Many thanks for your help. In our country, RICE is the main food, but i 've heard that RICE is not good for Thal. Is that right, Andy?
And could you pls tell me how to cook wheatgrass or kamut?

 

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