There's some good news, some bad news, some more bad news and more and more...

  • 32 Replies

Offline Sharmin

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Does Zainab use Exjade?  I am considering consulting with the drs in Oakland about Exjade during our visit. 



Offline Zaini

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No Sharmin,

Zainab has not started exjade yet,although my husband wants to start it and even doc at the hospital asked us to,but i took Andy's advice,her ferritin level checked previous month was 1350,i want it to be lower then 1000 before even thinking about exjade,she is taking ferriprox thrice a day,seven days a week and desferal thrice a week.I'll keep going like this for a while.

Personally what i think that exjade being relatively new drug,i'd like to play it safe,sometimes kids can't explain properly what they feel,adults can understand their own position,

Best of luck.



Offline asim_aziz

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@zaini yes you are right my faratin is 3-4 thousendish goes up and down in this range. Last time i used exjade with 2 desfrol daily result was my iron before was 3000 something then it got to 4000 and all of a suden got down to an unbelivible 1800. My doc said it hapened with other petiants too the iron going up and then coming down
in the race to be the champion there no finish line.


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