Rituximab tomorrow

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Offline Sharmin

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Re: Rituximab tomorrow
« Reply #90 on: May 06, 2009, 09:15:53 PM »
Thanks Canadian Family  :hugfriend

Lil A's hemoglobin today (3 weeks post) is 109.  We are waiting to see when the doctor wants to transfuse him.  He is booked for Friday but I think that he may be good until next week.  Hoping for the best - thank you all for your prayers and constant support.

Love you all,

Sharmin
Sharmin

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Offline Sharmin

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Re: Rituximab tomorrow
« Reply #91 on: May 06, 2009, 09:39:27 PM »
Hi guys - the doc said to wait until next week to transfuse :)

Sharmin
Sharmin

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Offline Zaini

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Re: Rituximab tomorrow
« Reply #92 on: May 07, 2009, 04:31:38 AM »
Hi Sharmin,

Thats good ,i am happy for Lil A,four weeks post transfusion is a good interval ,isn't it.I hope he'll continue to do well. :hugfriend

Zaini.
^*^Xaini^*^

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Offline Sharmin

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Re: Rituximab tomorrow
« Reply #93 on: May 07, 2009, 05:12:54 AM »
Hi Sharmin,

Thats good ,i am happy for Lil A,four weeks post transfusion is a good interval ,isn't it.I hope he'll continue to do well. :hugfriend

Zaini.

Thank you Zaini  :hugfriend

Yes, 4 weeks is ideal.  My hope is that he can go four weeks with a smaller volume of blood soon - but I am just very glad that he may be able to have a good hg at 4 weeks.  I hope and pray that his hg is close to 100 next week.    I am really looking forward to having his iron levels come down further and to be able to sustain him on exjade.  I hope to stop using desferal now. 

Sharmin
Sharmin

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Offline Dori

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Re: Rituximab tomorrow
« Reply #94 on: May 07, 2009, 07:52:05 AM »
I am glad for the outcome! 4 weeks must be so great! Enjoy this 4th week!

 :hugfriend

p.s. tomorrow it's my turn to have one....with an only 16 days interval (<5.3 mmol/l)

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Offline Manal

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Re: Rituximab tomorrow
« Reply #95 on: May 07, 2009, 06:02:45 PM »
Congratulations dear for the good news, i hope that soon you can reach a less volume each time he transfuse, best of luck :hugfriend

manal

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Offline Sharmin

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Re: Rituximab tomorrow
« Reply #96 on: May 08, 2009, 03:44:28 PM »
Manal,

Thanks my friend  :hugfriend  He seems to be doing well.  He is sooooo obsessed with soccer these days - he even keeps his soccer ball next to his bed at night and he gets upset if it is raining (because soccer has to be cancelled when it rains). 

I hope that Ahmad is doing better.  Is he looking less tired? 

Sharmin
Sharmin

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Offline Manal

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Re: Rituximab tomorrow
« Reply #97 on: May 08, 2009, 04:06:59 PM »
You are welcome Sharmin :hugfriend, today is much better but it seems that his HB has dropped because he looks very pale

manal

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Offline Sharmin

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Re: Rituximab tomorrow
« Reply #98 on: May 08, 2009, 11:56:16 PM »
Manal,

I am glad that he is doing better.  I hope that his hg has not dropped too much, sometimes they appear lower than they are when they are sick.  Lil A sometimes looks pale when he is sick even though his hg is okay.  I hope that he completely recovers soon.

Sharmin
Sharmin

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Offline Sharmin

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Re: Rituximab tomorrow
« Reply #99 on: May 12, 2009, 12:50:19 AM »
Lil A has a blood test tomorrow - this is the fourth week since his last tx (at 3 weeks his hg was 109).  I hope that his hg is good and that they do not find any antibodies when they do the cross match. 

He was sick for two days this weekend - fever and headache but he doesn't look very anemic (hoping....). 

Thank you all for your support - I hope that everyone is doing great :) 

Sharmin
Sharmin

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Offline Manal

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Re: Rituximab tomorrow
« Reply #100 on: May 12, 2009, 04:11:51 AM »
Best of luck Sharmin,  :hugfriend

manal

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Offline Zaini

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Re: Rituximab tomorrow
« Reply #101 on: May 12, 2009, 06:32:00 AM »
 :goodluck :hugfriend

Zaini.
^*^Xaini^*^

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Offline Sharmin

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Re: Rituximab tomorrow
« Reply #102 on: May 12, 2009, 04:17:03 PM »
Thank you everyone for your wishes.  His hg today after 4 weeks is 114.  That is strange considering that his hg last week was 109 (one of them must be an error).  He will receive a transfusion on Thursday because we already cross matched him, assuming that he would be low today.  To be honest his color is still looking really good.  I am guessing that he could have gone another week or two before needed a transfusion. 

Thanks again for the support,

Sharmin
Sharmin

Re: Rituximab tomorrow
« Reply #103 on: May 12, 2009, 04:30:25 PM »
Great News Sharmin. I am so glad that Little A is doing well.
Regards.

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Offline Sharmin

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Re: Rituximab tomorrow
« Reply #104 on: May 12, 2009, 04:42:05 PM »
Thank you Canadian Family, I hope that lil Ms. A is doing really well too :)
Sharmin

 

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