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NO TRANSFUSION FOR LAURYN!!!!!!!!!!!!!!!!!

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Offline Christine Mary

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  • Gender: Female
  • Mother of Lauryn, who has Thal Major
NO TRANSFUSION FOR LAURYN!!!!!!!!!!!!!!!!!
« on: April 30, 2007, 05:39:49 PM »
Hi guys!!!!!!!!!!!!!!!!!!!!

No transfusion for Lauryn today!!!!!!!!!
 :yahoo :yahoo :yahoo :cheer :cloud9 :cloud9 :cloud9 :cloud9 :cloud9 :heartred :clap :clap :veil :veil :veil :heartpink :love :love :party :stars :nurse :happydance :grouphug :high5 :bigparty :yay :wootwoot :yay :yay :bigparty :bigparty :wootwoot

Its been exactly 4 weeks since her last transfusion and she's still at a 10.2!!!!! Her dr doesnt want us back for another 2 weeks. Her retic count is also great-2.4 %.

We are still waiting for the DNA results to conme back. Is all of this strange? I didnt think majors went longer than 4 weeks... Lauryn will go 6!

Her dr also says it looks like she will transfuse less often than most majors?! Is this normal?

The only thing I didnt like was her spleen was STILL 3 cm. Is this okay?

I am so happy about this news. I wish I could hug all of you to show my appreciation for helping us and listening to me.

xoxoxoxo
 :hugfriend
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Lauryn's Mom
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Offline Andy Battaglia

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  • Will thal rule you or will you rule thal?
Re: NO TRANSFUSION FOR LAURYN!!!!!!!!!!!!!!!!!
« Reply #1 on: April 30, 2007, 05:44:54 PM »
WOW!  :biggrin  That's great news Christine! Of course we'll all start thinking about the possibility of intermedia and hydroxyurea but we best wait for the DNA results.
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Andy

All we are saying is give thals a chance.
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Offline Sharmin

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  • Little A
Re: NO TRANSFUSION FOR LAURYN!!!!!!!!!!!!!!!!!
« Reply #2 on: April 30, 2007, 05:53:13 PM »
That's wonderful.  The longer she can go between transfusions the better!  Transfusion requirements vary for different people, the average is about 4wks.  The longer your little one can go the better.  It's also nice that she didn't need to begin tx for such a long time.  This is good news and you should treat it as such.

All the best,
Sharmin
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Sharmin
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Kathy11

Re: NO TRANSFUSION FOR LAURYN!!!!!!!!!!!!!!!!!
« Reply #3 on: April 30, 2007, 11:47:54 PM »
christine .
Lauryn is cute and you are doing the best you can, for her.
I'm glad she doesn't require transfussion at this time.Let us hope it will holds up.a hug from me to Our darling little angel she has all the love to make it in this world,
Kathy
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Offline jzd24

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Re: NO TRANSFUSION FOR LAURYN!!!!!!!!!!!!!!!!!
« Reply #4 on: May 01, 2007, 12:14:45 AM »
That is such good news, Christine!! I am so happy for you and Lauryn.  :veil :flowers Jean
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Offline §ãJ¡Ð ساجد

  • Beta Thal Major
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  • 1991
  • Gender: Male
  • اَسّلامُ علیکم Peace be Upon you
    • Islamic Resources
Re: NO TRANSFUSION FOR LAURYN!!!!!!!!!!!!!!!!!
« Reply #5 on: May 01, 2007, 05:19:16 AM »
Hi Chrisitne!

That's a great news indeed!

:party :party :party

I'm soooooo happy!!  :happydance

Take care, Peace!
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اَسّلامُ علیکم Peace be Upon you
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Offline Alia

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Re: NO TRANSFUSION FOR LAURYN!!!!!!!!!!!!!!!!!
« Reply #6 on: May 01, 2007, 01:11:15 PM »
its really good news christine. sara was just the same when she started her blood transfusion.first she needed blood transfusion every 6 weeks as she grew older,now she gets blood every 3 to 4 weeks.docotor said as sara getting older she would be needing blood transfusion more often.
good luck with lauryn.
alia
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Offline akka1981

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  • Think positive, Confidence is the path to sucess
Re: NO TRANSFUSION FOR LAURYN!!!!!!!!!!!!!!!!!
« Reply #7 on: May 01, 2007, 03:06:19 PM »



Christine, so happy to hear this wonderful news. I hope Lauryn dont hve to transfuse like we do. Keep thinking positive. Hopefully God Willingly, she will be healthier.

Tc.
Akka
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Offline Zaini

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  • Life is too short to be perfect.
Re: NO TRANSFUSION FOR LAURYN!!!!!!!!!!!!!!!!!
« Reply #8 on: May 01, 2007, 07:19:19 PM »
Good news Christian,,let's hope for best in future  :hugfriend :hugfriend

ZAINI.
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^*^Xaini^*^
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Offline Canadian_Family

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Re: NO TRANSFUSION FOR LAURYN!!!!!!!!!!!!!!!!!
« Reply #9 on: May 02, 2007, 01:44:30 AM »
Indeed Great News!!!

My daughter was transfused every 6 weeks for the first year and now she is on 5 weeks regimen. We are still doing okay for 5 weeks as she is approx 11.0 after 5 weeks.

I am surprised if Lauryn was 10.2 why she was not transfused, doctors here don't wait for HB to drop below 10.0.

Hope everything is fine.

Regards
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Regards.
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Offline CLS

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Re: NO TRANSFUSION FOR LAURYN!!!!!!!!!!!!!!!!!
« Reply #10 on: May 02, 2007, 05:15:54 AM »
Christine,

It is really a good news.  I can fully understand the joy in your heart.  My daughter has hbh, thal intermedia.  Her hb has increased from 7.6 to 8 at last dr. appointment, I am so happy that I can't even explain to myself.  Just 0.4, so silly.  Keep it up.
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Offline Manal

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  • mother of thal intermedia child
Re: NO TRANSFUSION FOR LAURYN!!!!!!!!!!!!!!!!!
« Reply #11 on: May 02, 2007, 05:23:36 AM »
Christne, this is great :hugfriend

You really should be happy and we are too happy for you. Keep it up and please update us with the DNA test results

take care :wink

Manal
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Offline riya

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  • Gender: Female
Re: NO TRANSFUSION FOR LAURYN!!!!!!!!!!!!!!!!!
« Reply #12 on: May 02, 2007, 09:16:59 AM »
GREAT  NEWS! :clap :clap :clap :thumbsup :thumbsup
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